Jesy Nelson has shared the precious moment she had been longing for — seeing her twin daughters Ocean and Story smiling without their feeding tubes
Former Little Mix star Jesy Nelson has shared an emotional new glimpse of her twin daughters, Ocean and Story, after the 15-month-old girls underwent surgery that allowed them to say goodbye to the feeding tubes they had worn during their battle with Spinal Muscular Atrophy (SMA).
The singer, 35, delighted followers with a touching video showing her daughters relaxing together on the floor, their faces finally free from the nasogastric tubes that had become such a familiar part of their lives.

For Jesy, it was far more than an adorable family moment.
After months of hospital appointments, medical uncertainty and constant worry, seeing Ocean and Story without the tubes represented a milestone she had been longing for.
Sharing the clip on Instagram, Jesy summed up her emotions in just three words: “my whole heart.”
Ocean and Story share an adorable moment together
In the heartwarming footage, the twins could be seen lying beside each other on play mats while wearing matching white babygrows.
One of the little girls sweetly reached towards her sister, creating a tender moment that captured the close bond between them.
Jesy accompanied the video with My Little Light by Mary of Gold, adding to the emotion of the update.
The post comes shortly after the singer revealed how overwhelmed she felt to finally see her daughters’ faces without their feeding tubes and the plasters used to secure them.
For months, the tubes had helped support the twins with feeding as they navigated the challenges associated with SMA.
Their removal therefore marked an important new chapter for the family.
Jesy admitted she was terrified before the procedure
Although Jesy was desperate to see Ocean and Story without their tubes, she had previously admitted feeling frightened about the surgery required for the next stage of their feeding care.
Before the procedure, she shared footage of the twins in their hospital beds and described them as the “bravest girls in all of the world.”
Hours later, she posted images showing them sleeping peacefully with their faces free from the tubes.
The sight was understandably emotional for their mother, who said it felt almost like a dream.
Ahead of the operation, Jesy had reflected on the everyday experiences she had missed — including being able to cuddle her daughters without worrying about accidentally disturbing a tube or pulling away the plasters holding it in place.
She also spoke about how excited she was to see their little dimples properly again.
It was a reminder, she suggested, of how easily seemingly ordinary moments can become incredibly precious when a family is dealing with serious health challenges.
Why Ocean and Story needed feeding tubes
Ocean and Story have been receiving treatment following their diagnosis with Spinal Muscular Atrophy Type 1, a rare genetic condition that causes progressive muscle weakness.
SMA affects motor neurons, the nerve cells responsible for controlling voluntary muscle movement.
For babies with severe forms of the condition, weakened muscles can make activities including swallowing and breathing more difficult.
Nasogastric, or NG, tubes can be used to deliver nutrition directly into the stomach through the nose when feeding safely or consuming enough food becomes challenging.
Jesy has documented parts of her daughters’ journey publicly, using her platform to raise awareness of the condition and advocate for earlier diagnosis.
A life-changing diagnosis for Jesy and her family
Jesy shares Ocean and Story with her former partner, Zion Foster.
Since learning of the twins’ condition, the singer has spoken candidly about the enormous emotional impact the diagnosis has had on her family.
Her experience also prompted her to become a vocal campaigner for newborn SMA screening, arguing that identifying the condition as early as possible can give affected babies access to treatment sooner.
Early intervention can be especially important with SMA because treatment before significant symptoms develop may substantially improve outcomes.
That mission has transformed Jesy from a mother navigating an intensely personal challenge into one of the most prominent celebrity voices raising awareness of newborn SMA testing in Britain.
Jesy celebrates major breakthrough in SMA screening campaign
There has also been encouraging news away from the twins’ personal progress.
Jesy recently celebrated plans to expand newborn screening for SMA, following months of campaigning and discussions surrounding wider access to testing.
She had previously travelled to Parliament as part of efforts to push for broader screening, expressing disappointment when initial plans did not provide the coverage campaigners had hoped for.
The prospect of expanded screening was therefore deeply emotional for her.
Jesy said her hope throughout the campaign had been that future families receiving an SMA diagnosis would have a different experience because their babies could be identified and treated earlier.
Testing can be carried out using blood collected through the routine heel-prick procedure performed shortly after birth.
For Jesy, the campaign has become an important part of the journey she never expected to face.
A small family moment with enormous meaning
Despite the wider campaign and the public attention surrounding the twins’ condition, Jesy’s latest update was ultimately about something much simpler: a mother watching her daughters together.
There were no lengthy explanations needed.
Ocean and Story were simply lying side by side, dressed in white and reaching towards one another.
Yet after everything the family has experienced, seeing their faces without the feeding tubes made the moment especially meaningful.
Jesy’s understated message — “my whole heart” — captured just how much that ordinary-looking scene meant to her.
For the singer and her daughters, it represents another hopeful milestone in a journey that has already changed their lives — and a precious moment Jesy had been waiting a long time to enjoy.




